I cant breathe...well thats nothing new...but its actually alot worse than last week..sooo ive taken matters into my own hands again and upped my predisone. I wish they hadnt touched my dose weeks ago..because everything did go to hell after that. So ive put myself back up to 40 for the day and will start tabering it again and well see if im not as short of breathe.. because i dont have a lung infection i know this... its all stupid inflammation again. Lowering the o2 back to 4l WOULD BE FANTASTIC. Im not expecting miracles..but this week has been a million times harder than normal . I have ONE christmas gift left to buy and i no what im getting i just need the energy and breathing ability to go get it :P and im giong to get candy so i can do my gingerbread house...im at my sisters appartment right now alone..and im tempted to call myh parents and ask them if they can come help me pack everything back into my car. Though I no if i do that it will be used against me later on reasons why i shouldnt come over here anymore.
They mean well , its just driving me nuts. Like getting helped getting dressed is driving me up the wall..i feel 4 years old again. then i get mad and start cursing..and im not fun to be around. Im pissed at my own body..not my family. Im just frustrated that i have all these plans and no ability to do it ..grrr.
Im ok though i had fun playing dressup yesterday with my sweater dress and got all make up ed up. it was awesome.. i weent to pretransplant wiork up in nylons and a dress haha needless to say i made a statement :p haha
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